Well it is true! Matthew and I are busily packing our bags. We're scheduled to leave on Wednesday, for St. Paul, MN to the Minnesota epilepsy clinic. Since Matthew's diagnosis of infantile spasms, I've been in communication with Matthew's pediatrician, his neurologist and his early development coordinator in order to get Matthew more specialized care and get these spasms under control. I'd like to see them GONE, but I don't want to get my hopes up. Did I tell you I hate seizures. I REALLY hate them! They are robbers of Matthew's mind. I can just see him already starting to regress. He just looks so spacey with all the medication he's taking. He's now on 3 medications for seizures-too much medicine for one little man! I'm hoping they'll fine tune everything to maximize his medication and minimize the side effects.
And I truly don't know when we'll be home. They told me 2-10 days. The woman that authorizes Matthew's insurance for out of state was so funny when I told her that. She was like; "that's really broad-so how many pairs of underwear to you pack!!" Makes me laugh just thinking about it.
Yes, this means I'll be spending thanksgiving away from my family. I'm not particularly thrilled, but Matthew is way more important than one day. Christmas is coming, and I'd rather be home for that! Besides we've spend a lot of the major holidays at the hospital since Matthew's been born; so it sorta feels right :)
And Matthew turned 6 months on Thursday. I can't believe it! We got Christmas pics taken, but I'm going to get some of just him done when we get home. He's growing so much! I promise to post pictures soon, and I'll try to keep everyone updated on the blog while we're gone.
We'd appreciate your prayers as we embark on this very important journey!