Sunday, July 26, 2009
Thursday, July 23, 2009
..staying up late with Matthew and sleeping in way too long (we missed therapy twice this week!)
...de-cluttering my house. I am sick of all this stuff; goodwill is going to love me. I'm almost done with my bedroom. Next up, Matthew's room: Mason now wants to be upstairs again, and there is not enough room for the both of them!
.....seeing doctors. Matthew went to the doctor today. He was having ALOT of seizures and he also has an infection around his g-tube stoma. He got a dose of ativan...and he's been sleeping ever since; he was also within a whisper of another ambulance ride; but the medicine decided to work. On the good side of things; Matthew weighed in at 20lbs! We're up 2 pounds in 5 weeks!
...using my blender. Matthew's pediatrician wanted to switch his g-tube feedings over to pediasure; upon further investigation of the can of formula; I was unhappy with the ingredients. 1st ingredient water, 2nd ingredient sugar, then milk products (which Matthew is intolerant to) and then just chemicals to balance it out. So I went to google and did some investigation. I found a book written by a dietitian and a occupational therapist and a group of families who blend REAL food and make there own meals for there loved ones. I've been working with a local dietitian and I think we've got a recipe that we like, that provides the right amount of calories, fat, protein and nutrients for Matthew. Matthew seems to be thriving! The weight gain is evidence of that!
...contemplating that summer is quickly approaching an end for the kiddos :(
..spending time with friends and their kiddos doing warm summer activities!
Inspiration from this blog post came from here
Friday, July 17, 2009
Sunday we were up and at-em. Matthew has been sleeping so good and he slept through the night at the hotel; something I wasn't sure he'd do. We went downstairs for breakfast; I always try to stay someplace that has a good continental breakfast..it saves us some money and we don't have to drive. Lately we have been putting Matthew in his blue tomato chair in his stroller, so he can sit up like a big boy. If he starts out asleep though, we just put the carseat in the stroller. Sunday, he was wide awake, so we strapped him in his stroller and blue chair and headed downstairs. I was very suprised at the different way people acted around Matthew. When Matthew is in his carseat, everyone always peeks in and says, aw what a cute baby!! In his blue chair though, we just got TONS of stares; and then they would quick look away when they realized we saw them looking at him. I guess his disabilities are more evident when he is sitting up. I saw a shirt once that said; 'keep staring, I might just do a trick.' While that is very synical, sometimes I feel like telling people that it's not okay to stare. I DON'T mind you admiring my baby, and even asking questions (I actually welcome that), but I guess it bothers me when people just stare. I know they probably don't know what to do, and so I try to have grace, and just smile; but after a while, I have to say it really bugs me to feel like we're always on show.
Anyway, after breakfast, we got ready to go to the Mall of America. It was only 5 minutes away, so we just had to go. Wow, is that a great place, even if you don't like to shop. We basically walked around the whole time and ate great food! It is four stories tall, and has over 500 stores! There is an amusement park in the center...way cool! I took some pictures, but they didn't turn out so wonderful. When we go back next summer, we plan on taking the kids. They have a Leg0 store and a American Girl store. Here is there website if you want to check it out!
After walking around for about 5 hours, we decided to go back and veg out at the hotel; which we did. We ordered pizza, which a bad experience. I wanted a pizza with Chicken, tomatoes, and onion on it with a diet coke, Steve wanted wings and a dr. pepper. The Papa Johns that we ordered from was out of chicken, mushrooms (which I chose 2nd after they told me they were out of chicken) Dr. Pepper and wings!!! We decided to order from another pizza place, but there crust was to be desired!
We also went down to the pool, which Matthew did okay with. He didn't hate it, but didn't love it either. The water was really warm, so that helped, but I couldn't hold him away from my body or he cried.
Monday morning we went to see his epileptologist. First they did his EEG and then the doctor saw him. He said the two EEG's (one from when he was hospitalized in November and the one from that morning) looked completely different. He said that this new one was SOO much better. He was okay with us continuing to decrease his phenobarbitol, we're hoping to get rid of it and only be on 2 seizure medications. With these decreases, we've seen his personality starting to emerge. I'd sure love to get him off as much of his medication as possible. He was very happy with all that had happened since he saw us last and wants to see us in 6 months. That will be in January, so I think I will be flying for that appointment. He also warned us though, that even though we were seeing so many good things now, to be ready for bad times also.
Then for the VERY long trip home. I had forgot to mention that we had left the other kiddos with friends and family. Megan and Mason ended up in South Dakota with Grandma and Papa, and Micah was with a friend down the street. We picked them all up, and were exhausted when we finally got home.
Tuesday was our 13th anniversary, but spent very uneventfully since we had just spent the weekend out of town.
On our way home, I found out a friend of mine, who was pregnant, had lost her baby that same day, and she had asked me to be with her at the hospital when the baby was delivered. She was induced on Tuesday evening and I stayed with her for awhile and then went back up in the middle of the night when she delivered. Oh, that is such a hard time, and especially harder when it is a friend of yours. I stayed as long as I could and then went home at daylight so Steve could go to work. So Wednesday was basically gone too.
Last week, our dryer had shorted and caught fire...yes, our household is always busy :) It scared the crap out of me, but other than the dryer being very melted, no other harm was done. Thursday we were able to get that fixed; which was good, because my laundry room was starting to take the shape of Mount Everest. So I spent the rest of this week trying to catch up on my laundry (I'm still not done, in case your wondering)
Matthew also had therapy Tuesday, Wednesday and Thursday.
Well, there is our week in a very long recap. Sorry, I don't have any pictures; I haven't been so good at taking them lately.
I think I've almost caught up on my lost sleep, so I'm hoping for a really fun week next week. In less than 5 weeks, school starts here....where is the summer going?????????
Thursday, July 16, 2009
Thursday, July 9, 2009
I LOVE Chinese food. (So do my kids!) I would eat it almost everyday if I could. I found a recipe on the above mentioned website, and tweaked it. Here is the result. Close to Chinese, but alot cheaper.
It's actually pretty easy.
Ramen noodles, the oriental flavor - (I buy 5 packages...but 2 of my kids only eat the ramen... if I were feeding Steve and I, I would probably be able to get by with 1 package)
Some type of protein. I happen to love tofu that is 'browned' in a skillet (fried in oil)
Veges- I used 1 package of frozen broccoli and 1 package of fresh baby bella mushrooms that I quartered
I cooked the ramen noodles and drained them. While the noodles were cooking, I browned my tofu (you could cook chicken or beef chunks if you so choose for your protien) When my tofu was done, then I added my veges and stir-fried them. In a separate bowl, I wisked together 1/2 c. of water and 1 1/2 teaspoon of cornstarch for each packet of ramen (So in my case it was 2 1/2 c. of water and 7 1/2 teaspoons of cornstarch) and wisk that together with your seasoning packets from the ramen noodles. Add this mixture to your tofu/vege stirfry. Stir until thick and bubbly. Serve over ramen noodles. I REALLY like this recipe. It's a sort-of close knock off to chinese and you pick your veges and such. And, it's not expensive. And it gets a thumbs up from all my kids. Win-win situation!