My Grandpa, seen here with my Grandma and their 6 great-grandchildren, passed peacefully into rest yesterday . We'll miss you grandpa!
Wednesday, February 10, 2010
Tuesday, February 9, 2010
The grand tour
Matthew has decided to do a tour of hospitals. October and November was Childrens in Omaha; November and December was Childrens' in St Paul. February is St. Elizabeth's which is a bit closer to home for us and since I work here, it makes things a little easier.
Last week, Matthew started sleeping; ALOT. He was only a wake 1-2 hours a day. By Friday, I figured I better at least let someone know what was going on. His doctors in MN suggested I give 2 ounces of juice to see if his blood sugar was low. Since he is on the ketogenic diet; and gets very little sugar, this can be a concern. I gave Matthew 2 ounces of juice and he woke up almost immediately and then preceded to be awake all night. Dr. D had also requested that I give him a phone call on Saturday with an update. When I told him that things were looking better, he said; "well he's probably getting sick, keep a close eye on him". When your body is fighting something, it uses more glucose than normal and since he is getting very limited glucose, he most likely had a low blood sugar.
Sunday morning he woke up coughing and vomiting. He continued to cough and vomit most of the morning; so I called our on-call pediatrician for some cough syrup. She wanted to see him the office that day instead (our office has "sick" Saturday and Sunday hours). By the time she had seen him Sunday; he had vomited 40 times, and was vomiting continuously in the office. She wanted him admitted immediately. And I didn't get my cough syrup I wanted, either.
It took 8 pokes to get his IV in, and the last 5 were from the anesthesiologist. He is one of my favorite anesthesiologists too. He worked so hard and so patiently but Matthew was sooo dehydrated. When we put Matthew on the scale, he had lost a pound since he had been in the doctors office on Wednesday, all from dehydration. Sunday, they gave over 800 cc's of fluid before he had a wet diaper. They were wanting to put a catheter in him; but I requested that they just be a bit more patient. As soon as he caught up fluid wise, he has been fine.
I can do a lot of things for Matthew at home, but when he won't keep fluids down, I am sunk. And Matthew just doesn't have the reserve to be able to tolerate being dehydrated.
This hospital stay does NOT have me worried. If he were one of my other kids, he would be at home, sucking on popsicles and ice chips, getting room temp baths and lots of love. But like I said; Matthew's body cannot tolerate being off balance, so here we are.
Today he's still coughing a lot, but not so hard that he is vomiting. They have his feedings back at 2/3 the amount of normal. And there is talk of letting him go home late tonight or tomorrow if they can get him to tolerate full feedings and his medications.
Last week, Matthew started sleeping; ALOT. He was only a wake 1-2 hours a day. By Friday, I figured I better at least let someone know what was going on. His doctors in MN suggested I give 2 ounces of juice to see if his blood sugar was low. Since he is on the ketogenic diet; and gets very little sugar, this can be a concern. I gave Matthew 2 ounces of juice and he woke up almost immediately and then preceded to be awake all night. Dr. D had also requested that I give him a phone call on Saturday with an update. When I told him that things were looking better, he said; "well he's probably getting sick, keep a close eye on him". When your body is fighting something, it uses more glucose than normal and since he is getting very limited glucose, he most likely had a low blood sugar.
Sunday morning he woke up coughing and vomiting. He continued to cough and vomit most of the morning; so I called our on-call pediatrician for some cough syrup. She wanted to see him the office that day instead (our office has "sick" Saturday and Sunday hours). By the time she had seen him Sunday; he had vomited 40 times, and was vomiting continuously in the office. She wanted him admitted immediately. And I didn't get my cough syrup I wanted, either.
It took 8 pokes to get his IV in, and the last 5 were from the anesthesiologist. He is one of my favorite anesthesiologists too. He worked so hard and so patiently but Matthew was sooo dehydrated. When we put Matthew on the scale, he had lost a pound since he had been in the doctors office on Wednesday, all from dehydration. Sunday, they gave over 800 cc's of fluid before he had a wet diaper. They were wanting to put a catheter in him; but I requested that they just be a bit more patient. As soon as he caught up fluid wise, he has been fine.
I can do a lot of things for Matthew at home, but when he won't keep fluids down, I am sunk. And Matthew just doesn't have the reserve to be able to tolerate being dehydrated.
This hospital stay does NOT have me worried. If he were one of my other kids, he would be at home, sucking on popsicles and ice chips, getting room temp baths and lots of love. But like I said; Matthew's body cannot tolerate being off balance, so here we are.
Today he's still coughing a lot, but not so hard that he is vomiting. They have his feedings back at 2/3 the amount of normal. And there is talk of letting him go home late tonight or tomorrow if they can get him to tolerate full feedings and his medications.
Monday, February 8, 2010
New pictures
Last week we took new pictures of the kids. It was definitely needed, it'd been awhile!! So check my sidebar for some cute new pics of all four kiddos!
Wednesday, February 3, 2010
Go, Matthew, Go!
When I posted about Matthew's new chair, I got a comment on that post from Barbara over at therextras. She encouraged me to try to get Matthew more upright, even if it was for minutes a day. Well, I took her comment to heart. I've been getting Matthew as upright as he can be and then waiting until he would tire from it, and then tilting the chair back just a bit until he would tire from that incline, and I'd keep doing that until he got to a place where it wasn't so much work for him to sit up. I looked at those pictures on my blog the other day; and I can't believe the difference he's made in just a short time. Here's some pictures from last month and pictures I took the other day.
And here is a side view: this perhaps speaks more.
And here is a side view: this perhaps speaks more.
Matthew is tolerating being this upright for about 15 minutes, before his head gets a little heavy for him. I'm surprised how quickly we've seen results!!
Tuesday, February 2, 2010
Rights of passage
Mason has finally entered the "I get money from the tooth fairy" era. He has been waiting soooo long. It didn't take him long to go from "I have a loose tooth" to "Mom, look I lost my tooth!" He kept saying, "Mom, it's so tiny; I can't wait for my man tooth" Funny boy!
Friday, January 29, 2010
Crafty girl: part 2
Nursing covers
I have a cousin who makes nursing covers for her friends who are having babies. I have two friends who I work with who are due to have babies soon. We had a baby shower for them this last weekend and I decided I too, would try my hand at these covers. I LOVE the way they turned out. I will be making more of these.
I have a cousin who makes nursing covers for her friends who are having babies. I have two friends who I work with who are due to have babies soon. We had a baby shower for them this last weekend and I decided I too, would try my hand at these covers. I LOVE the way they turned out. I will be making more of these.
Thursday, January 28, 2010
Crafty girl: part 1
Lately, I've been working on a lot of different projects, mainly sewing but also knitting too. I thought I would showcase some of my recent projects:
made into the colors of red, white and black to stimulate Matthew's eyes. Complete with taggies for sensory input and to use to hook to his stroller. I also put a jingle bell in each for auditory input. Matthew loves them!
more projects to come.....
Soft fabric blocks:
made into the colors of red, white and black to stimulate Matthew's eyes. Complete with taggies for sensory input and to use to hook to his stroller. I also put a jingle bell in each for auditory input. Matthew loves them!more projects to come.....
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