Matthew is still at Children's. Retching, has become a real problem. He is requiring 7 times the normal amount of his medication that we use to control the vomiting. He is scheduled for an MRI and rebotoxing his salivary glands (this helps with his secretions) on Thursday. He has been back on TPN since Monday, and the retching is no better. The doctors are unsure now if it is brain related, GI related, or secretion related. This is the only thing keeping us in the hospital. We're praying they'll figure something out on Thursday that will help him.
His arm is not swollen anymore, so I believe the clot in his arm is gone. I believe they will look at his heart again before we leave to see if the vegetation is smaller in his heart. They do not want us going home on TPN and neither do we. That is what started this whole ordeal in the beginning. When he is ready for discharge, he will go home on two IV antibiotics for the next (at least) 4 weeks.
So basically, we've gotta get his retching under control. It's worse than it ever been (and that's saying a lot), but he still manages to smile in between. He's a strong kid!