Sunday, July 26, 2009

Worried....

Something is wrong with Matthew. What it is, I don't know. Since Thursday he's been screaming, extremely jittery and acting very weird. No one seems to know what's wrong with him. I've been to the doctor on Thursday, had tests to check his shunt on Friday. I've talked with his epileptologist Thursday, Saturday and today. No one seems to know what's wrong. The biggest thing that has been going on is we have been decreasing one of his seizure medications, so we thought that was the problem. But we've given him big doses of it, and it doesn't seem to be the problem. I don't get nervous often with Matthew; I'm actually very comfortable (often more than the doctors) with him...but not right now. I've actually toyed with just packing him up and taking him to the hospital, but the good neurologists are 6 hours away...that's a big ER trip. So the doctors are going to conference about Matthew tomorrow. Hopefully we'll get something figured out.

12 comments:

Sherri said...

*hugs* We will be praying for things to get better so you won't have to make a trip anywhere! Call anytime if you need to talk :)

Michelle said...

*more hugs* We'll be adding our prayers too!

Melanie (Teagan's mom) said...

We'll be thinking of Matthew! I hope he is back to his happy self soon, and that you can get some relief from the worry! Keep us posted! *hugs*

Unknown said...

Sorry to hear about this. I saw Steve and the kids leaving church early on Sabbath -- and Ron mentioned something about Matthew being very fussy -- screaming. Wish there was something someone could do. Keep us posted -- and until then -- just know we are praying, too!

Keeslermom said...

Oh, poor guy! And poor you too! We will be praying. Please keep us updated!

Diane said...

I hate that feeling and knowing something is wrong but nobody has any answers. Just know that we are praying and keeping Matthew in our prayers.

Diane, tyler's mom

Unknown said...

I will keep Matthew and your family in my prayers!

Anonymous said...

Thinking of you & praying for you. Please keep us posted. We hope you & the doctors can get it figured out VERY soon. God is with you...listen to His still small voice.

Anonymous said...

all my best thoughts and wishes are with you.

Lisa Christine said...

Jill, I am so sorry that I am late reading this post. Please keep us posted. Matthew will be in my thoughts and prayers. I have a very special place for Matthew in my heart :)

Anonymous said...

Dear Steve,Jill & family....Just heard about your quick trip to Minnesota .....hadn't heard about little Matthew's latest troubles causing all the extra worries and sleepless nights....I will put the last addition to your blog on Prayer and Praise....Do take care and God be close to all of you and I pray you feel His presence and mercy and grace and see evidences of answered prayers moment by moment! Take care and God Bless!
With love, hugs, and prayers....Pastor and Darlene :)

micah said...

hey mom how are you doing we miss you and im praying for you and matthew every night.We all will pray for you hope you will make to are baptism and we miss you alought i wish he would just get better and i hope the docter finds out what is roung.

love you
micah