Well, we're still in Omaha. Not much chance of leaving either, at least for a while. They have been upping Matthew's phenobarbitol and his level seems to be where it needs to be. There has been a LARGE lack of communication between the neurologist and the resident doctors and the hospitalist. At 4 am this morning, Matthewhad had enough. He had decided he was going to write his first blog entry on the "' top 10 reasons to hate the hospital." Mommy even gave him permission to use the computer :) He had been thinking of reasons for some time. But-- the hospitalist came in today is WONDERFUL and talked to Matthew. She took care of all of our frustrations and even had a serious talk with the residents and the neurologist.d hopefully there will be more communication.
Mommy, on the other hand, is exausted. there is little thought for the parent to get real sleep and with full vital signs every 4 hours and with 5 different people in our room ito "assess" Matthew at 5 different times between 6:45 and 8:30 a.m. there is not much sleeping going on. We have been heavily relying on naps throughout the day. We're hoping this changes tonight since one of the many new orders written by the Dr. was to change his vital signs to every 8 hours, yeah!!!
I have some pictures of Matthew on my camera, but my batteries are dead!! I'll have to wait till we get home. I am seeing improvement in some areas and I *think* the seizures are getting less intense. I'm ready for them to be gone, though. I'm hoping we'll get to go home by Sunday, but not sure on that. I'll try to update every day and let everyone know what is going on.
Please pray that these seizures stop, that they find the perfect combination of medicine for Matthew, that the side effects are minimal and that there has been no long-term damage to his precious brain.