Sunday, September 7, 2008

We are home, sorry this took so long!

We are home, got here around 3pm. I immediately crawled in bed for a much deserved and needed nap. I slept 4 hours. I have to work 12 hours in the morning, so I'm going to keep this short. I have much to tell you all of our experiences in the hospital, but my sleep is taking priority tonight. I promise I will write more, perhaps tomorrow evening or Monday afternoon.

Matthew is now on Phenobarbitol (they doubled his dose) and Trileptil (another seizure medicine) for his seizures. We have only noticed *slight*seizure activity today with maybe only 3 seizures lasting 45 seconds or less. If you didn't know what you were looking for, you probably wouldn't even notice, you'd think he was just a little jumpy. He was smiling and cooing today as we've never seen him. He is CONSIDERABLY less fussy. It's amazing. We're seeing a cute little personality emerge. Which makes us feel even worse that he's probably been having seizures for many weeks and we just didn't realize it. The docor says that the longer the activity goes on, the longer it takes to reprogram the brain *not* to seize; hence why it's taken so long to get the seizures to stop and why they are still sort of happening. Let me stress though they are a minute fraction of what was happening. We truly have brought a different baby home from the hospital. and we have NO plans of visiting again anytime soon!!!

7 comments:

Anonymous said...

I am so glad you are home! We'll all keep praying!
-Laura Wiese

Michelle said...

We're thrilled to see you that you are home! Woo hoo!

Connie said...

Glad things are improving for Matthew. We enjoyed a pleasant evening with your folks and Kim & James at their cottage on the lake. It has been fun to visit. Sleep well and we will keep praying for you all.

Sherri said...

Yay! You're home! Sounds like Matthew is much more comfortable! That is so wonderful. My offer to watch the kids still stands...even if Mom just needs to catch up on sleep :)

Lisa said...

HURRAY!!!! Glad you made it back...and glad you got a nap in!

Anonymous said...

Aunt Delores. SO glad you are home and that Matthew is better. We are praying for all of you. I'm so glad you have this blog site. Now if I could just learn how to get a message back to you. Love you.

Kristen said...

Much needed sleep...I'm sure that is an under statement! Glad to hear you're home and Matthew is doing better. **hugs**

I agree our little trio would be a blast!! We'd definitely have to get Lisa to move to Nebraska then too...what do you call a group of four...quartet? Oh wait, I think that's only if the people sing or something. You don't want to hear me sing!! :o)