We are home, got here around 3pm. I immediately crawled in bed for a much deserved and needed nap. I slept 4 hours. I have to work 12 hours in the morning, so I'm going to keep this short. I have much to tell you all of our experiences in the hospital, but my sleep is taking priority tonight. I promise I will write more, perhaps tomorrow evening or Monday afternoon.
Matthew is now on Phenobarbitol (they doubled his dose) and Trileptil (another seizure medicine) for his seizures. We have only noticed *slight*seizure activity today with maybe only 3 seizures lasting 45 seconds or less. If you didn't know what you were looking for, you probably wouldn't even notice, you'd think he was just a little jumpy. He was smiling and cooing today as we've never seen him. He is CONSIDERABLY less fussy. It's amazing. We're seeing a cute little personality emerge. Which makes us feel even worse that he's probably been having seizures for many weeks and we just didn't realize it. The docor says that the longer the activity goes on, the longer it takes to reprogram the brain *not* to seize; hence why it's taken so long to get the seizures to stop and why they are still sort of happening. Let me stress though they are a minute fraction of what was happening. We truly have brought a different baby home from the hospital. and we have NO plans of visiting again anytime soon!!!