Saturday, January 3, 2009

hi ho, hi ho, it's off to Omaha we go

Well, we can't seem to keep ourselves out of the hospital. Matthew's seizures/episodes have gotten worse, and somehow he caught a cold. We don't take him out very many places ever, in fact I can't recall taking him anwhere this week, and no one at home is sick, so it baffles me where he got sick. We are very diligent about keeping him away from sick people, although a cousin of Matthews was sick over Christmas that we didn't exactly know about till later, but I don't know if it could be showing up a week later???? I think a combination of the two (seizures and cold) has depleted Matthew's energy and he doesn't want to eat, or wake up for that matter. So with the combination of seizures, temperature, sickness and general not eating/sleepiness, we decided to take him to the ER. He immediately got a breathing treatment, RSV test (which is negative), CT scan (normal), shunt survey (normal), chest xray (normal), lab work (all normal and his seizure medications theraputic) and 10 (yes 10) IV pokes, none of them successful :( . ER decided it was best to admit us and try to figure out what's going on. So his shunt is working and his meds are good, so who knows WHAT is going on. They decided it was best to give him an NG tube to give him extra food and liquids to try to boost his intake a bit. Steve was going to bring some breastmilk from the freezer to give him overnight, but the roads are really icy and he doesn't want to risk coming up tonight. So I'm going to try to pump some inbetween feeding him so he has milk to put in his NG tonight. They will be giving all his meds in his NG tube along with an all night drip feeding. Hopefully he'll be feeling better in no time. The on call neurologist will come see him tomorrow and ordered an EEG for Monday.
In anticipation of having to stay, I did pack a bag and my favorite companion laptop, so I'm set for a day or two. I will keep all updated.

1 comment:

Lisa said...


Bummer :( No fun at all. Poor little Matthew. Take care and I hope he is feeling better soon.

Keep us posted!