Monday, February 2, 2009
Matthew has not been taking his medications well at all; especially in the last 4 or 5 days. He used to get them in his bottle, but at 6 months, I think he got a good taste of them in his bottle and has refused a bottle ever since. He was doing fairly well with solids- taking 2 or so tablespoons of food, so we decided to add his meds to his food. Well now, he won't let us put ANYTHING in his mouth (except for breastfeeding, that is. He has figured out we can't alter that) and when we do give him his meds, he throws them up; sometimes twice. So last night, I was at my wits end! I was SOOOO frustrated. I promised myself I would call his pediatrician in the morning. When I talked to the nurse, she immediately got us in. After weighing him, we found out he hasn't gained any weight in 2 months and has acutally lost almost a pound. We talked about our options and decided on a long term NG tube to see if we could keep meds out of his mouth and then try to work really hard on his oral aversion and to try to give him some extra calories. We don't know if he hasn't grown because he has low growth hormone or what. He's breastfeeding beautifully; just not eating baby food. So, she actually wanted to admit us overnight to make sure he would tolerate the NG and to start giving him feeds through the NG. I know we'll leave it in for awhile to see if we can get him to eat baby food again and mainly just use the tube for meds. He may get some extra calories at night to see if that helps his weight. We also see Dr. Lutz (metabolic physician) next week, so see if he thinks if something else is causing his non weight gain (I think so, since he nurses so well.) Anyway, it'll be a quick stay- I put his NG down myself so that the nurse could see I could do it myself at home. I put NG tubes down every day at work, so it's not a problem. It was easier for me to put an NG down than force him to take his meds. The nurse was suprised I didn't have a problem; and said that she thought I couldv'e gone home tonight. Oh well, we'll be outta here tomorrow morning!