Hey, it's Kristen posting for Jill again. I am glad that I had the urge to check my email one last time before I head to bed. I found a message in my inbox with Jill's latest update.
Words from Jill:
It's 10 pm here, so I don't know if Kristen will post it tomorrow (it's really 11pm for her). Matthew got moved from the PICU to the epilepsy unit. He is off oxygen and we have not seen any seizures. The epileptologist came in this evening and said his EEG isn't "clean", but it never has been. We know his brain is abnormal. They have halved one of the 4 new medications that he is on. We are going to try to not have him sedated but relatively few seizures. Matthew's attending epileptologist will be on tomorrow, so he will hopefully make the big changes. I think it will probably be baby steps, but I am excited for the changes. Matthew has been relatively awake tonight, smiling. He still is very congested and coughs a lot and struggles a bit to breathe, but being off oxygen is good. Not much new to report, but I think we'll have even more information tomorrow.