This morning Matthew was somewhat awake around 9 am and I was so excited; it was time to get the tube out. When I told the respiratory therapist; she said that we had to wait until rounds were over. We that is usually around 1 pm. I sorta lost it when she said that. I basically said that I was sick of waiting when for when it was convenient for the doctors instead of convenient for Matthew. I know that it's probably not the best way to handle it; but I couldn't help myself. I'm tired and my temper shortens when I'm tired. The respiratory therapist talked to the charge nurse, who in turn talked to the doctor and he came right over and he agreed he could be extubated now and that we wouldn't have to wait until later. Around 10 am they extubated him and he coughed and sputtered for the next couple hours. He had so many secretions from his airway being so irritated that he was having a hard time adjusting to breathing and keeping his airway clear. They gave him a medication to help dry up the secretions he was having, which helped almost immediately and he slept very comfortably for about 3 hours. He was still working hard to breathe, but he could sleep. Around 4:30 he woke up and was working hard again to breathe. They gave him a breathing treatment and some medication to decrease the swelling in his throat. This has seemed to helped some and he is resting semi-comfortably now. He has not "eaten" since Saturday night in preparation for having the tube removed and they do not want to feed him until they are sure he will be fine respiratory wise. Maybe this evening we'll start feedings.
I talked with the neurologist this morning also and he thinks it will be best for us to go to Minnesota also. He is a different neurologist (the doctors take turns taking hospital call in 2 week segments) and he is known as "the best pediatric neurologist in Nebraska". He has a special interest in epilepsy. He said his EEG is very difficult to read and things don't match up. He said we can look at transferring him as soon as he is stable with his breathing for 24 hours. I am optimistic about this. They always seem to find the right balance when we go to Minnesota.
We'll see what tomorrow brings.