Words from Jill:
Matthew had a bit of a rough night last night. He has so much junk in his lungs and the back of his throat that he has to try to cough up. He is so sedated with all of his seizure medications that coughing is hard for him. So he is having a hard time keeping his oxygen levels up. The nurses and I were up frequently suctioning him, and we finally just put oxygen back on him around 3 am. I woke up at 8 and fed Matthew and then we both went back to sleep at 10 and slept till 12:00.
Dr. Doescher came in shortly after noon and gave us the plan. After looking Matthew over, he asked if this is how he's been (activity wise). I said yes and some days were worse than this. He couldn't believe it. He was not getting the same picture of Matthew over the phone. He apologized for the delay of getting him up here, but he said he didn't know he was that bad. We talked about making a plan for the future in case something like this would happen again. He said unfortunately that he got two very conflicting stories from the doctor and myself and that was very frustrating for him. He sees now that he was not told the whole story.
Dr. Doescher also got a pediatrician involved, and they ordered for chest percussion to be done to loosen up the junk in his lungs and then another medication to be given by way of breathing treatment to thin his secretions. He already sounds so much better!
I am at peace here. The difference in care is night and day. I trust Dr. Doescher as he's done such great things for Matthew in the past. I'm starting to really miss my other kids, but know that this should be the final step to get Matthew home for a long time.
Thank you for continuing to pray for Matthew and our family! We appreciate your prayers and the kindness showed to our family!