Today has been fairly uneventful. We increased his feedings to full rate yesterday. He is still having some discomfort from his port surgery; but we have been giving him tylenol around the clock to help with that. He got an unexplained rash last night, but a dose of benadryl helped immensely; and the rash hasn't returned.
Today has just been a hang out day. We went for a walk; went to the auditorium to play bingo and got a good nap. He has only thrown up twice; and both times were after medications. The doctors feel that if he has a good night, we can go home bright and early tomorrow. Well, actually we will be stopping by at his neurologists office for a regularly scheduled checkup. And we will need to make an appointment with his pediatrician to get a plan into place that allows for a nurse to come into the home to start IV fluids if and when his retching returns.
We are ready to go home. I am in my my full "hospital funk" mode. For me that entails a very sarcastic attitude,not wanting anyone in my room, and keeping the door closed at all times. When it appears, I know we've been here too long. So hopefully, without much difficulty, we will be heading home tomorrow.