Hi. It's Kristen. I have...
Words from Jill:
Not much new to report. Matthew has slept almost all day. When he awakes, he has seizures. They've upped some meds they think might help, decreased others that haven't helped. The new ones aren't helping either. I've quit keeping track of what they are giving him and when. I can't remember if I said, but his MRI was fine.
His list of seizure meds today (for my own information mainly, in case someone asks, so I can go back and remember)
Versed
Fosphenytoin (loading dose given today)
Felbitol (increased)
Lacosimide (decreased)
Phenobarbitol
Zonegran
7 comments:
1st!!!!!!!!!!!
Mike said I should say that because that's what everyone always does on Lisa's blog and it would be funny for me to do it to your blog since I know when the postings go up. :)
We've been praying, specifically for Matthew's right temporal lobe...that is the spot that you said is "angry", right?
I wish there was something we could do to make this all better. It's such a helpless feeling.
We love you Jill!
Sweetie, you sound tired :( We are praying for Matthew and your entire family. The prayer partners at our church are praying for Matthew as well. Tell Steve, I will be bringing dinner tomorrow a little after 6.
Any funny wardrobe choices by #9? Love you.
You must be exhausted. And STILL having no answers must be so frustrating. I don't know what else to say except that we will keep praying for Matthew for as long as it takes, which I hope will not be too much longer.
Jill,
Our prayers continue for Matthew, YOU, and all of your family. God knows the beginning from the end. Keep trusting in HIM!
Jill, Matthew, and family....
What a rollercoaster!..Please know that I am continuing to pray for you all! Here is a verse that I have quoted before...but again comes to mind...
"We also pray that you will be strenthened with all His glorious power so you will have all the endurance and patience you need. May you be filled with joy..." Colossians 1:11 (NLT)
Tons of Hugs!
Jill, I continue to think of you and Matthew several times a day and continue to pray for answers and that the doctors can find the right medication to stop the seizures.
Kristen, thank you again for keeping us updated and being the "middle man" for communication.
Diane, Tyler's mom
Well, if Kristen can say '1st' I will go ahead and say,
7th!!!!!
Anyways...
22 days....that is so long. You must be so tired and worn. Poor Matthew. I can't imagine all that his little body is going through.
I wish there were more I could do to help your family. Just know that I am thinking of you often.
Take care.
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