Words from Jill:
DAY 18!!!!
So not much new to report. Last night as soon as Matthew woke up, he started having short little seizures, but pretty close together, so the decision was made to "load" Matthew with a quick acting medication to stop the seizures. This did the job, and Matthew slept all night and most of the morning. He was off oxygen all day, but during the evening he required oxygen again. I think he kept the night nurse busy with suctioning him and such, but I was so tired last night, I didn't hear a thing.
Dr. Doescher came through this afternoon, and said that this will not be an easy fix. He is on so much medication, that the doctor is not sure which med to decrease first. He did make a decision to decrease one of them, and we'll see how it goes. I think this is going to take some time. Meanwhile, when Matthew woke up this afternoon, he started having the seizures again, so they loaded him again, and started an IV (#14 in case you'd like to keep track, and IV poke #32...that tally does not include blood draws). The seizures have not stopped yet, so they will have to give him another medication in his IV to try to stop these seizures that works quickly until the non-sedating medications have time to work. The non-sedating meds take longer to kick in, so we have to wait patiently.
I'm afraid that we're hunkering in for a bit of a long stay. I'm willing to be patient though, because I've seen the results we get when we are here. I have much more tolerance. Even though I miss my other kids and my hubby immensely, I know this is what's best for Matthew. And I'm hoping that we'll be home by Thanksgiving. And if we get to go home sooner, I'll count it as a blessing.
2 comments:
Last night, before I went to bed, I was thinking about you and Matthew...and wondering what day you guys were on. I went back through your posts, remembering it was before Halloween when Matthew went into the hospital. Eighteen days...that is such a long time! After I read today's update, out loud to Mike, his comment was "Wow, Jill's doing so good." I'm sure you don't always have that perception of yourself, but you have all of us amazed and completely inspired by your thoughts and perspectives. It's not easy keeping a positive, grounded mind set on the goals when you're so tired and homesick.
We'll never stop praying.
I love ya, Jill.
Man oh man, what a long haul. As much as I hate the fact that poor little Matthew has had to be sedated soooooo much, when I read how many IVs and pokes he's had, it made me glad that he hasn't had to be awake for all of them. Poor boy. I am so glad you are with good doctors who you can trust and rely on, and I will continue to pray for you all.
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