I apologize for not updating sooner. For those of you who follow Kristen's blog, you know that Matthew has been very sick for a while now. We were readmitted to the hospital on Monday, and then dismissed on Thursday. While he was admitted, they started him on TPN, an IV nutriton. We were hoping starting this would help the vomiting. It didn't seem to get any better. He continued to vomit, but the staff was sure it was most likely due to secretions. So they sent us home on Thursday. Friday, a home health nurse came out and didn't think Matthew was well enough to be at home. She called our pediatrician, who wanted to see us in the office. When we went to the office, our pediarician felt that we had exhaused our tries in Omaha. Our GI on Omaha has said that there is really nothing else he can do for us. So in talking with our pediatrician, he said we had two choices. Choice 1 was to try to make him as comfortable as possible, and eventually he would vomit enough that his esphagus would tear and he would bleed ubtil he passed. Option 2 was to get a second opinion from another GI doctor. We have a working relationship with Minnesota,and option 1 was not an option for us. So our Dr called MN and told us to pack a bag and get tot the hospital. There was only one problem, there was a huge snowstorm coming through. The sitiuation felt desperate enough that we decided to make the trip. My parents offered to take the kids and so Steve and I and all the kids packed up and got on the road. It was a long trip..a trip that normally takes 6-7 hours took us 9. We arrived in St. Paul around 3 am. Our pediatrician called the ER doctor to tell us we were coming and so they were expecting us. The trip was not easy for Matthew; hevomited most of the trip. We were quickly settled and lab work drawn. His hemoglobin was better than we thought and hwe didi not require a blood transfusion.
GI and neurosurgery has come to see us today. They believe that he is a tough case, but that they have some ideas and some more things they can do for him. We are doing ultrasounds, xrays and will be doing blood tests. They are also going to tryh to do his scope and involve an ENT doctor with this procedure to see if they can figure out what is wrong. Today was a better day than yesterday, though we haven't really changed anything. My blog is blocked from signing into on the hospitals internet network, so I was able to type this up on my phone. Please excuse any typos. I will do my best to get you updates as I have founf out just how many people care so deeply for us. Yesterday was very tough for us, but today we feel refreshed and in a safe place. We appreciate your prayers. We know God is in control. The franticness of yesterday has been replaced with peace today.
We are hoping for aquiet day tomorrow and hopefully less vomiting ( today has been still a lot of vomiting bit bot as much blood loss). As long as they can keep him stable, Monday will be a big day of tests.
Thank you for praying!..we love you all very much!