It's Kristen posting again. I have an update from Jill about Matthew:
No update yesterday; but no new was GOOD news! Matthew had a wonderful day yesterday for the most part. He was up and going early in the morning, and all the doctors made their rounds early. The goals for him were to get off of oxygen and by 4pm we had accomplished that goal. He did so well! He was batting the oxygen out of his nose by noon that day; and it was all the respiratory therapists could do to keep it in his nose. By 4 o'clock; i asked to just keep it out to see what he would do. He hasn't had oxygen since. Thursday we had taken the G-tube out and the doctors were worried he wouldn't keep his medications down without putting them in his J-tube; but he has kept them down beautifully. He had the perfect day yesterday. He fell asleep around 9 pm and woke up around midnight. He was screaming in pain and then he gagged. I vented his tummy and a bunch of green bile was in his stomach. He vomited 3 more times throughout the night; which was disheartening; but I asked for some zofran for him and then he slept peacefully. So my question today to GI will be what he thinks about our evening. We we vent Matthew; we never see greenish/yellow bile. And we saw that for 1/2 the night and now we are just getting clear stuff again. This kid sure is a puzzle.
We will be asking GI today also what is the plan for the weekend/ beginning of the week. When will we start feeding him? Will we do a scope still? What will be our goals for discharge. Yep; you read that right; discharge. They are pushing for a thanksgiving goal. We have spent the last two thanksgivings here; and will spend another one here if we need to; but we are going to try to avoid it.
We are also getting visitors today. Matthew's grandma and grandpa (my parents) are coming to stay with me for the weekend! What a lucky girl I am!! I am so happy!