Quick update

I know some of you are waiting for an update and I'll try to give you a brief one and then send a big update tomorrow to Kristen to post. Matthew has had a good day overall. He is still on high flow oxygen, but it is set to room air. Nasically they are just using it to push more air in Matthews lungs. Matthew has been running fevers all day today but his lab work is good. His chest Xray is good so basically they think this is more of a virus vs. Aspiration; although I am questioning this.
We took out Matthew's GJ tube today and replaced it with a G tube to see if this helps his retching. And sadly today we have seen some vomiting, but not any retching{ which is kind of good}
Today friends of ours that we met here at the hospital here last year ( and are strangely hospitalized again at the same time as us) got some very sad news today about their sweet little girl. They are now having to deal with the emotions of taking their sweet girl home to keep her as comfortable as possible ; as medically there is nothing that can repair her brain.
Also,this evening I heard a nurse cry out from across the hallway "I need some help in here!" Followed by nurses running from every direction and the sound of a code being called overhead. My knees trembled and my heart broke for that childs family. I'm not sure of the outcome, but prayers were sent heavenward from our room.
There is sadness all around, but I also feel God's presence. I am tucking in for the night; and just wanted to give you all an update. If you have kids..go give them an extra squeeze today..life is short.