Saturday, October 3, 2009

Today's update

Matthew seemed to have a better day and evening yesterday. He mainly slept the whole day; awakening for just an hour or so around supper time. He seems to just out of nowhere spike fevers. Not just any old fever; but like 103 degrees. We are trying to keep him comfortable with Tylenol and ibuprofen. He was also up and semi-agitated around midnight last night; but I was able to calm him and get him back to sleep. He woke me up again around 4 am very agitated; breathing fast and with a high fever. We tried everything, rocking him, snuggling him, bringing him in my bed to snuggle, nothing could get him out of this agitated state. So we again had to give him something to help sedate him. That worked like a charm and he was able to sleep the rest of the night. I'm very reluctant to keep giving him sedatives; but we at this point don't feel like we have a choice. He is so agitated that he is unable to get the rest he needs. All his muscles are stiff and he just wants to sleep as stiff as a board with his back arched. It really is getting tiring to watch your baby keep fighting with this. He seems to sleep better during the day; but night-time is our enemy. The doctors just keep saying that with time, he will get better. I will be glad when this is behind us!

On the home front: Steve still is sick with the flu and Mason has also caught it. As of this morning he says he is feeling better than yesterday; but it seems as if this virus is tricky like that. It makes you think you are better and then side-swipes you again. Megan is currently the lone-ranger; she is the only one who has not fell victim. I'm praying she stays well and that Steve and Mason continue to be on the mend. I have almost fully (other than an occasional irritating cough)recovered from it. I am left with a smaller appetite (that's not a bad thing) and some low energy; but feel strong enough to do all the things I need to.

Matthew's therapist sent us this verse yesterday and it is hanging over his bed:

"We also pray that you will be strengthened with all His glorious power so you will have all the endurance and patience you need. May you be filled with joy.." Colossians 1:11

Thank you so much to everyone who's praying, offering to help our family, and supporting us. It is a helpless feeling situation but we appreciate everything! Continue to pray for Matthew's body to be strong and fight this nasty bug!


Anonymous said...

I am so sorry to read how sick Matthew has been and still is.

I hope they are researching every possible reason for his stiffness.

Get well wishes and prayers for you whole family.

Lisa said...

Matthew has been on my mind non-stop. In fact, I was just telling my mother in law all about poor Matthew.

Still in my prayers.....

Zoe said...

Continuing to pray! Please keep us posted.

Kristen said...

Sending you all my love and prayers!!

Carla said...

praying for Matthew & your family...I've been thinking of you all.

Anonymous said...

Stay strong, call us in the night if you're up and need to chat! It's red weekend staff (me, tina, lisa, sarah, leeann, ward and denise) take care